Chronic headaches represent an enormous medical problem both worldwide and in the US. Migraines alone represent the most common primary headache disorder for which people seek treatment. It is estimated that over 36 million people suffer from migraines in America1, representing about 11.5% of the population or more than one in 10 people. Chronic migraines are thought to affect 2% of the population or over 7 million people in the US2. If you factor in both direct and indirect (e.g. days of bedrest) costs to the healthcare system, you are looking at between $10-$30 billion dollars in annual expenditure3,4. Moreover and specific to migraines, it has been shown that the health-related quality of life of people suffering from this type of debilitating headache approximates that of patients suffering from congestive heart failure, high blood pressure or diabetes5. Interestingly migraines are primarily defined and diagnoses made by their clinical characteristics. In other words, headache patients are usually diagnosed as suffering from migraines if they have recurrent attacks, a pro-drome (e.g. warning signal), an aura, a headache and a post-drome (e.g. after effects). While many patients can relate to these symptoms, not every patient is the same. Specifically, while other types of headaches have slightly different characteristics, there are similarities in symptoms with migraines and sometimes, patients can have symptoms characteristic of more than one type of headache. In those cases, how should we diagnose the patient?
In my view, a different way to think about headaches and perhaps to classify them is by what the underlying etiology (i.e. cause) is thought to be. I am a firm believer in doing the most conservative thing possible that would give you the best result and along those lines, an evaluation by a neurologist and/or headache specialist with a careful work up is a critical first step. Appropriate imaging (e.g. MRI of the brain, cervical spine, etc.) as necessary and trials of medications are often the first lines of evaluation and treatment, usually with non-operative interventions as adjunctive measures. Examples of such adjunctive modalities are physical therapy, therapeutic massage, acupuncture, biofeedback, etc. However, as we note above, there are so many people that suffer from debilitating, chronic headaches that even if only 10% of people fail such measures (the number is likely much higher), then we have millions of people who continue to suffer greatly. In these instances, we often have to “think outside the box”. There continues to be a growing body of literature which suggests that some people suffer headaches as a result of peripheral nerve compression in the head and neck region and who find relief from nerve decompression or even neurectomy (i.e. transection of the nerve) with muscle implantation.
Given that many people who fail traditional treatment as outlined above have been given the diagnosis of migraines (or migraine variants), perhaps it is our diagnoses that are incorrect. Many of those same people are successfully treated with surgical decompression. Perhaps, many people who have been diagnosed with “migraines” actually have neuralgia. This word comes from a combination of neur - meaning nerve and algia - meaning pain and hence the word itself literally means nerve pain. The question is which nerve is causing the pain and what can you do about it? Fortunately, there are good answers to these questions, but the diagnosis of neuralgia must be on the radar screen of the evaluating physician. Hence, if traditional modalities have been unsuccessful or only partially successful, don’t lose hope!